Evaluating internet information on attention-deficit/hyperactivity disorder (ADHD) treatment: Parent and expert perspectives

Alonso Montoya; Sergio Hernández; Montserrat Pamias Massana; Oscar Herreros; Marta Garcia-Giral; Esther Cardo; Jose Angel Alda Diez; Cesar Soutullo; Alberto Fernández-Jaén; Joaquín Fuentes

doi:10.4103/1357-6283.112801

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ORIGINAL RESEARCH PAPER

Year : 2013 | Volume : 26 | Issue : 1 | Page : 48-53

Evaluating internet information on attention-deficit/hyperactivity disorder (ADHD) treatment: Parent and expert perspectives

Alonso Montoya¹, Sergio Hernández², Montserrat Pamias Massana³, Oscar Herreros⁴, Marta Garcia-Giral⁵, Esther Cardo⁶, Jose Angel Alda Diez⁷, Cesar Soutullo⁸, Alberto Fernández-Jaén⁹, Joaquín Fuentes¹⁰
¹ Clinical Research, Lilly Research Laboratories, Alcobendas, Spain
² Facultad de Psicología, Universidad de La Laguna, Tenerife, Spain
³ Servei de Psiquiatria Infantil i Juvenil. Corporació Sanitària Parc Taulí, Sabadell, Spain
⁴ Unidad de Psiquiatría Infanto-Juvenil, Hospital Virgen de las Nieves, Granada, Spain
⁵ Servei de Psiquiatria i Psicologia infantil i juvenil. Hospital Clínic, Barcelona, Spain
⁶ Servicio de Neuropediatría, Hospital Son Llàtzer, Palma de Mallorca, Spain
⁷ Servicio de Psiquiatría y Psicología Infanto-Juvenil, Hospital Universitario Sant Joan de Déu, Barcelona, Spain
⁸ Unidad de Psiquiatría Infantil y Adolescente, Departamento de Psiquiatría y Psicología Médica de la Clínica, Clínica Universitaria, Universidad de Navarra, Pamplona, Spain
⁹ Servicio de Neuropediatría, Hospital Universitario Quiron, Madrid, Spain
¹⁰ Servicio de Psiquiatría Infantil y Adolescente. Policlínica Guipúzcoa, San Sebastián, Spain

Correspondence Address:
Alonso Montoya
Lilly Research Laboratories, Avenida de la Industria, 30, 28108 Alcobendas (Madrid)
Spain

Source of Support: This work has been supported by Lilly Research Laboratories, Alcobendas, Spain., Conflict of Interest: None

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DOI: 10.4103/1357-6283.112801

Background: The Internet is increasingly used as a source of health-related information. The objective of this study was to assess the quality of web-based information on treatments for attention-deficit/hyperactivity disorder (ADHD). Methods: Sixteen expert health professionals in ADHD and 35 parents of paediatric patients with a recent diagnosis of ADHD assessed the information contained in the 10 highest ranked websites in Spanish, using the Spanish version of the DISCERN tool - a validated questionnaire designed to assess the quality and reliability of web-based information on treatment choices (rating scores from 15 to 75). Results: DISCERN scores given by parents and experts were low (total mean scores [standard deviation]: 35.9 [13.1] and 43.4 [13.7], respectively) and inter-rater agreement was poor/moderate (weighted kappa for the global assessment between -0.69 and +0.93, average = 0.29). There was a significant change on the ADHD-knowledge and motivation for treatment (ADHD-KMT) basic knowledge sub-scale score after the assessment of the different websites by parents (total mean scores [standard deviation]: 49.09 [9.46] and 63.21 [9.45]). Conclusions: Despite a poor/moderate inter-rater agreement between parent and expert opinions, all agreed that the quality of the web-based information on treatment choices for ADHD is generally poor.

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